You never leave someone behind, you take a part of them with you and leave a part of yourself behind. Whenever I’m away, I give Lily a pink heart to sleep with and she gives me a tiny purple heart to carry!
Days when I have to leave for the benefit of Harper are very hard on me. I pray Lily never gets resentful and always sees how much I love my family! Poor Petey…
We made it safely and are anxious to see what the next three weeks of Therasuit Therapy will bring! I am excited about Wednesday when we get to see Maddie again, one of Harper’s CDKL5 friends that lives near the Austin area. AND, I am also looking forward to reconnecting with my friend, Lia. It will be a beneficial week for both Harper and I! Any other friends in the Austin area who want to catch up and see Harper let me know!! I’m here for 3 weeks!!