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Month-by-Month: Hope4Harper CDKL5 2015 Year in Review

Month-by-Month: Hope4Harper CDKL5 2015 Year in Review

by hope4harper | Dec 29, 2015 | Harper's Updates

Hope4Harper reviews 2015 month-by-month January and February were pretty uneventful as Harper and I happily recovered out of the hospital and at home from our Christmas 2014 car wreck and flu.   We were well enough by the end of the month to go ice skating and...
CDKL5 Hope: Experiencing a Virtual Seizure and more from AES 2015

CDKL5 Hope: Experiencing a Virtual Seizure and more from AES 2015

by hope4harper | Dec 12, 2015 | Harper's Updates

Speak until somebody listens. And don’t stop there! The annual meeting of the American Epilepsy Society was a success!  AES 2015 was a time of reconnecting face-to-face with several individuals, organizations and doctors we now call friends.  Professional and...
AES Annual Meeting 2015: How do parents in special needs families prepare to travel?

AES Annual Meeting 2015: How do parents in special needs families prepare to travel?

by hope4harper | Dec 7, 2015 | Harper's Updates

“It is always sad when someone leaves home, unless they are simply going around the corner and will return in a few minutes with ice-cream sandwiches.” ― Lemony Snicket Preparation to leave our CDKL5 family is intense! It’s off to Pennsylvania for the 69th...
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