Lily’s Adjustment to CDKL5 Loss

Lily’s Adjustment to CDKL5 Loss

Lily’s Adjustment to CDKL5 Loss Lily has been adjusting to Harper’s absence surprisingly well. Lily made a video for the research Lab taking care of Harper’s living, growing cells!   Won’t you consider contributing through Memorial Run...

VESICOSTOMY: Our CDKL5 Child’s Surgery

One more “normal” that is taken away from Harper My head hung, my heart sank, and I fought back the water that began to fill my eyes.  It’s just one more thing Harper has to deal with; one more surgery that is risky in and of itself. Increased risk when...