Blog
Blog
Our journey with Harper was full of adventure, difficult decisions, and exciting possibilities. Please use the search bar to type in a word of the experience you are searching for such as, CBD, Organ Donation, Eye Gaze, GTube, etc…. If you are unable to find information please feel free to contact us directly and we will help you in any way we can.
BUTS
The word “but” is a simple sentence connector that is often times used to signify a negation. To negate is to nullify. To nullify is to make of no use or value. Do you feel the negativity? As we approach the Holiday Season we should be approaching cheerful times of thankfulness. Please REMEMBER The holiday […]
Run4Hope Highlights Video
Our thanks to McKee Smith for providing highlights from Run4Hope 5K race benefiting Hope4Harper. The race was held Sept. 8, 2012, in Andy Brown Park in Coppell, Texas.
CDKL 5 and ME…
Having A Child With Special Needs Has Made Me A Stronger And More Patient Individual Yes, I have more patience than I used to! 🙂 Circumstances have forced me to recognize my situation is bigger than I am and that I need love and support from everyone I know… and don’t know. The creation […]
CDKL5 CHAMPIONS
The RACE IS ON TOMORROW!! Sat. Sept 8, 2012 Run4Hope 5K Fun Run Fundraiser for CDKL 5 Seizure Research REGISTER ONLINE NOW Run4Hope is a 5K Fun Run/Walk/Crawl for ALL Ages! Prizes for First, Second, and Third Place MANY Door Prizes to Win! An Athletes Village will highlight all Sponsors and Supporters FOR THOSE THAT […]
WHAT ARE YOU RUNNING FROM?
REGISTER ONLINE NOW Mail-In Registration VIRTUAL RUN FOR THOSE THAT WANT TO ATTEND AT HEART! (Goal: ONE RUNNER PER STATE) A Sincere THANK YOU to Many Anonymous Donors…we call them “Friends of Harper” AND Our GENEROUS Run4Hope Sponsors: JASON’S DELI www.jasonsdeli.com RUN ON, COPPELL Fitness Apparel and Shoes www.runontexas.com LEWISVILLE VOLKSWAGEN www.lewisvillevolkswagen.com […]
WHAT’S YOUR LANGUAGE?
Looking at Yoga as a Means to Interact with Special Needs Children Yoga, a system of exercise to promote control of the body and mind requires movement, balance, and focus. Both Harper and Lily have been participating in Yoga for slightly more than a year. Not long after introducing Harper to Yoga we learned that […]
VITAMIX Gives Hope to Harper with CDKL 5
Vitamix changes lives…consider them when changing yours! http://www.vitamix.com/ American made and built to last this awesome machine is pureeing food into nutritious meals for our family that you’ll want to eat! Thanks to the generosity of this family-owned organization “committed to improving the vitality of people’s lives” our family is now using the Vitamix to […]
Supporting CDKL5 with Julia
Two-year-old JULIA, Hope4Harper CDKL 5 Friend for August The following is written by Julia’s Mama: When I start talking about my Julia, I sense how my emotions are beginning to run very strong. I just need to get up and get going and hold on to HOPE. “Julia Started Having Seizures and the Nightmare Began” Life […]
Do you have HOPE in your CDKL5 GENES?
WHAT KIND OF GENES ARE YOU WEARING? 7000 rare diseases and they support them all! www.globalgenesproject.org
Brook Hubbard – Tay-Sachs Disease
Hope4Harper followers: Please meet Brook Hubbard Brook’s family just received the news of their daughter’s diagnosis for a disease that is incurable and untreatable, Tay-Sachs Disease. Brook will not live past age 4. Please consider giving up your morning cup of coffee tomorrow and donating to the Hubbard Family at the link below your $1, […]