Blog
Blog
Our journey with Harper was full of adventure, difficult decisions, and exciting possibilities. Please use the search bar to type in a word of the experience you are searching for such as, CBD, Organ Donation, Eye Gaze, GTube, etc…. If you are unable to find information please feel free to contact us directly and we will help you in any way we can.
HAPPY BIRTHDAY!
Harper, my love: This is it, today is your big day! You are now 2 years old! Mommy and Daddy are so proud of your strength and all you have accomplished this year. When you turned one we had just found out about your CDKL5 diagnosis and with the help of friends started Hope4Harper. […]
COME ON AND CELEBRATE AND HAVE A GOOD TIME!
ONLINE BIRTHDAY AUCTION! Hosted by DOLLY’S FOUNDATION from April 12-15th! Tune into http://www.facebook.com/dollysfoundation for details! There is some awesome stuff…you won’t want to miss out! AND We will be celebrating Harper’s birthday on April 12th with Chick-fila Spirit Days at 3 various locations. Carrollton– at Old Denton and George Bush, Plano– at Plano Parkway and Park, Lubbock– South Plains Crossing. If you […]
COUNTING DOWN
Today is April 7th: My Granny’s Birthday – Happy Birthday Granny, I love you! 5 DAYS until my birthday!! 1 day before Easter The start of the Crawfish Festivities in my neighborhood! We celebrate today with KING CREOLE, Elvis Presley’s 4th movie and some CRAWFISH! (http://youtu.be/XrC5Aybim-Y) How will you be celebrating todays festivities? Leave a […]
GOOD DAY
It is interesting the moments in time that vividly remain in our hearts. Two years ago Easter was on April 4th and we anxiously awaited Harper’s arrival as she had until the 12th to come on her own. Well, her birthday is April 12th and not by her choice! 😉 As significant as her birthday […]
IT’S OFFICIAL
TODAY IS APRIL 1st! This year, today is significant in multiple ways: Today marks the start of Harper’s Birthday Month. 30 days designed to celebrate Harper, give her the monumental birthday bash she didn’t get when she turned one, and increase awareness of her Cause, Hope4Harper, which is officially a non profit organization. We have […]
April Fools CDKL5
This humorous day of light hearted pranks is a great resource for teaching children differences between lying and tricking. Children of many ages and abilities can participate in this day full of laughter. Remember to video those hard to hold back laughs as the kids wait to see the face of the person they tricked! […]
WE JUST WANT TO STOP THE SEIZURES – CDKL5
We have traveled to the supposed “best” seeking successful treatment for Harper, but what exactly does “the best” mean when they continually refuse to acknowledge your expertise of your child despite your personal detailed documentation. What we have discovered is that “the best” are those most knowledgable about documented cases but not the most willing […]
CDKL5 Shamrock!
Today, March 17th, St Patrick’s Day, a day to wear green and celebrate the luck of the irish! You’ll never pinch us because we support the green year round as the color which represents Harper’s rare genetic disorder known as CDKL5! In another effort to help Harper gain better control over the most devastating symptom […]
CHASING A DREAM – CDKL5
Thank you Chris Elms for coming to Dallas! (http://specialneedschildren-chriselms.blog/)spot.com) We enjoyed our 4 days of intense therapy and it couldn’t have come at a better time for Harper! There are 291 days until the end of the year but ONLY 28 DAYS UNTIL HARPER TURNS 2!! For most parents the first birthday is a […]
HAPPY BIRTHDAY DR SEUSS!
We care about you Harper yes we do, and here are all the ways we show you. We share your story on a plane. We share your story on a train. We share you here and there and everywhere. We share your joy and we share your pain, in the sun and in the rain. […]