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Blog
Our journey with Harper was full of adventure, difficult decisions, and exciting possibilities. Please use the search bar to type in a word of the experience you are searching for such as, CBD, Organ Donation, Eye Gaze, GTube, etc…. If you are unable to find information please feel free to contact us directly and we will help you in any way we can.
10 Months
WE CANNOT IMAGINE LIFE WITHOUT THIS CBD PRODUCT! We lived with utter torture for nearly four years prior to finding CBD! HempMedsPx RSHO High CBD Hemp Oil is NOT a Miracle CURE but rather a LIFE CHANGING product for our family! What’s important to remember about...
7 Months
Harper, Hemp, and Seizures: Our hopes being realized? On Monday, April 14 Harper had a 24 hour Video Electroencephalography (VEEG). EEG refers to the recording of the brain’s spontaneous electrical activity over a period of time. VEEG can detect abnormal brain activity like seizures. Her last VEEG was in December 2012. At that time Harper showed a […]
Rep’s Office Steps In, Medicaid Moves…A Little Bit
Ta-Da!! LOOK WHAT CAME TODAY!!! Thank You to a friend who reminded us our state congressman could be of great value. With the help of Representative Ron Simmons office, Medicaid was forced to abide by their protocol. The rule is they must request additional information -or- provide an answer to us within a certain time frame (which […]
Losing Her Voice: Medicaid Denies Communication Device
“Words are only painted fire; a look is the fire itself.” ~Mark Twain The frustration of Harper being denied her voice We have been trying to obtain the Tobii Digital Eye Gaze Communication device since May 6, 2013!! We were denied at the end of 2013 and resubmitted January 1, 2014. Medicaid asked for clarification and […]
NO FOOLING: April 1, 2014 Call for Donations, Sponsors, Volunteers
Wrap up your spring cleaning, then bring us your stuff!! Thanks to The Weitzman Group and Trinity Management Company everything is in place for Harper’s 3rd Hoarding 4 Hope indoor garage sale. Once again The Weitzman Group has donated 3200 square feet of sale space for the annual indoor garage sale fundraiser to benefit Hope4Harper. We […]
The Flight After Disney I Never Shared: KNOW YOUR RIGHTS!
IMPORTANT TRAVEL INFORMATION: You have the RIGHT to make sure you are sitting with your children prior to boarding an airplane. Once you are on board you are subject to the flight attendant’s and captain’s discretion. Should you not be seated next to your children and the person assigned the particular seat next to your […]
MARIJUANA’S LEGAL COUNTERPART: Industrial Hemp has changed Harper’s Life
LEGAL seizure relief in our home state In the recent issue of People Magazine there is a great story of how Medical Marijuana, specifically the breed Charlottes Web, has changed the lives of many. The article also addresses the flock of people who are uprooting their lives looking for a sense of relief from the […]
Pseudomonas and a Hospital Update: DISCHARGED!
Harper: 1, Pseudomonas: 0 The rare germ that landed Harper in the hospital earlier this week was called pseudomonas….a mean little bug for someone like Harper. After having to research what could kill it, Harper was given clindamycin through IV and it worked to kill this rare germ. She would get something rare! Ha As I […]
Gold, Black, or Both? Our RSHO Question
Bottom line is hemp helps Harper! A few weeks ago we added Gold Hemp Oil to Harper’s hemp routine. I saw improvement in both seizure activity and alertness by using Gold during the day and Black at night. I am unable to confidently give an accurate seizure count because the last 3 weeks Harper has been battling […]
WAIT…..WHAT?
Eight weeks and I have been crying for three of them! This was definitely not part of the plan when looking into scheduling permanent birth control solutions. Apparently we can make our desire for no more babies permanent …..IN SEPTEMBER! If there is ONE thing we should have learned from Harper it is to go with […]