CDKL5 VACATION

ALL PACKED   I wish it were that easy!  Planning for this vacation took months, packing took 2 weeks! Paying for it….we’ll worry about that when when we get back! ;P Just Kidding Seriously, when dealing with kids, as some of you may know, it’s a chore to...

Today in My CDKL5 Life

5:00 am: alarm goes off 5:27 am: I actually get out of bed Make coffee, shower, get dressed, make Lily’s breakfast, Harper’s breakfast, pull Lily’s allergy meds, pull Harper’s meds for the day…she has a shoebox full, no lie! In the midst of the...

SACRIFICES 4 CDKL5

 LAST DAY HOARDING 4 HOPE GARAGE SALE IF YOU SEE IT, TAKE IT…LEAVE A DONATION OF ANY AMOUNT AT THE DOOR! This event was one of our standard three for the year to raise money for awareness of Epilepsy and CDKL5 as well as to fund CDKL5 Seizure Research.  JUNE is...