CDKL 5 and ME…

Having A Child With Special Needs Has Made Me A Stronger And More Patient Individual Yes, I have more patience than I used to! 🙂   Circumstances have forced me to recognize my situation is bigger than I am and that I need love and support from everyone I know…...

CDKL5 CHAMPIONS

The RACE IS ON TOMORROW!! Sat. Sept 8, 2012 Run4Hope 5K Fun Run Fundraiser for CDKL 5 Seizure Research REGISTER ONLINE NOW Run4Hope is a 5K Fun Run/Walk/Crawl for ALL Ages! Prizes for First, Second, and Third Place MANY Door Prizes to Win! An Athletes Village will...

WHAT’S YOUR LANGUAGE?

Looking at Yoga as a Means to Interact with Special Needs Children Yoga, a system of exercise to promote control of the body and mind requires movement, balance, and focus.  Both Harper and Lily have been participating in Yoga for slightly more than a year.  Not long...

VITAMIX Gives Hope to Harper with CDKL 5

Vitamix changes lives…consider them when changing yours! http://www.vitamix.com/ American made and built to last this awesome machine is pureeing food into nutritious meals for our family that you’ll want to eat!   Thanks to the generosity of this family-owned...

Supporting CDKL5 with Julia

Two-year-old JULIA, Hope4Harper CDKL 5 Friend for August The following is written by Julia’s Mama: When I start talking about my Julia, I sense how my emotions are beginning to run very strong.  I just need to get up and get going and hold on to HOPE....