BACK TO BASICS with CDKL5

PRESSURE Love’s such an old fashioned word  And love dares you to care for  The people on the edge of the night  And love dares you to change our way of  Caring about ourselves  …. This is our last dance  This is ourselves   Over the past two years we have...

GENETICALLY MODIFIED – CKDL5

\”…We all Want to CHANGE the World…\” Dustin and I have taken two very different interests but yet we have stumbled together in the process to find that it is all intermingled.  Dustin’s focus is politics and mine has been medical.  Both interests...

CELEBRATION OF FRIENDS

Meet Amber http://cdkl5amberandus.blogspot.com/!  Her Birthday is April 22nd.  She is one of Harper’s CDKL5 friends.  Her mom Carol Anne Partridge is an amazing woman who not only has she managed to raise an wonderful family but, she is a board member of the...

FRIDAY THE 13th

What do ya think?  Do I look older to you?  MY birthday was a huge success!  Thank you EVERYONE, family, friends and  supporters for joining me in celebrating this very special day!  THE ONLINE BIRTHDAY AUCTION will continue until April 15th.  Visit...

HAPPY BIRTHDAY!

Harper, my love: This is it, today is your big day!  You are now 2 years old!  Mommy and Daddy are so proud of your strength and all you have accomplished this year.  When you turned one we had just found out about your CDKL5 diagnosis and with the help of friends...