Today, March 17th, St Patrick’s Day, a day to wear green and celebrate the luck of the irish! You’ll never pinch us because we support the green year round as the color which represents Harper’s rare genetic disorder known as CDKL5!
In another effort to help Harper gain better control over the most devastating symptom of her rare condition, SEIZURES, we will set sail, via Delta Airlines, for the Minnesota Mayo Clinic on Monday. We are in hopes of good things for Harper from this visit as she has suffered such major set backs these last 3 months. Yet through it all both her and Lily remain in good spirits and we are proud of them both for their bravery.
On a side note: Thanks to modern technology we have been able to condense Harper’s Medical Records from this:
To this:
