7 Months Seizure Free in Perspective
We enjoyed 7 months of seizure freedom: Harper’s smiles, attitude, increased vocalization, improved head control, and interaction with the family. What a blessing, a joy, a complete experience of “normal” despite Harper’s physical limitations.
Sadly, I must report that the seizures are now visible again, but… they are not as intense or as frequent as before the use of RSHO from HempMeds.
Along with her improvements over the last 7 months of being seizure free Harper has gained ten pounds! AND she has remained healthier than we have seen her in 4 years!! The most difficult issue to detect in Harper is a urinary tract infection (UTI). Her inability to really explain how she is feeling when she doesn’t feel well prevents us from knowing she has a UTI issue until it is a full-blown, painful, possible-hospital-stay-required problem.
How or Why Harper’s Seizures Have Returned
For the first time in 7 months Harper does not feel well. Vital signs are normal but she acts ill and says yes when asked if she does not feel well. Last Monday tests confirmed positive that Harper does have a UTI. She was placed on medication and luckily we are still at home. So the question remains: Did her seizure come back because she is sick? We won’t really know for another couple of weeks as she continues to recover from her UTI.
Either way, we throughly enjoyed the last 7 months knowing, understanding, and interacting with Harper. We hope to regain the seizure freedom in the future but are thankful for the reduction and decreased intensity RSHO continues to provide (that no other pharmaceutical was able to).
Our plan moving forward is to consider Harper’s weight gain and other factors and then reassess and readjust Harper’s dosage of RSHO. While doing that, we will continue our day-to-day routine, which is always busy!
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- Time in the sunshine with Spirit
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- Swim Therapy
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- Attitude?
“Epilepsy is not beyond a cure, it is simply underfunded”
-Brandy Parker, My Epilepsy Story
November is Epilepsy Awareness Month. In an effort to help increase awareness we encourage you to paint your toes purple and upload a picture for our 2014 Purple Toes 4 Epilepsy event. Please also share this event with others. The unfortunate return of Harper’s seizures are a clear reminder that awareness, research and legalization of viable seizure control options is needed. The graphic below is a sad reminder of how little is spent on research considering that epilepsy will affect 1 in 26 Americans in their lifetime!
