JUNE IS INTERNATIONAL 

CDKL5 AWARENESS MONTH

…and Harper starts it off with 3 MONTHS NO VISIBLE SEIZURES which is, in my opinion, thanks to the addition of Industrial Hemp Oil to her diet!

Why Awareness?

June 17th 2014 is CDKL5 Worldwide Awareness Day.  Creating a meaningful level of awareness throughout the world is vital to those who live with CDKL5.   It is a rare, non hereditary, life-threatening disorder that affects the lives of approximately 600 individuals in the world and their families.  When Harper was diagnosed in 2011, she was one of only 300 known cases worldwide.

Without awareness it is difficult to raise funds and find research opportunities that could eventually cure this devastating disorder.  Lime green is the color that represents the CDKL5 disorder that Harper and others suffer from.  Please consider showing your support by sharing this post with others and sporting your lime green in June for CDKL5 Awareness.  To learn more about CDKL5 visit the parent resource page at CDKL5info.com. 

Looks like I’ll be getting my nails done!! 🙂