Organ Donation
Organ Donation
In 2016, our youngest daughter, Harper Howard, passed away from CDKL5 Deficiency Disorder (CDD). In the midst of chaos, we made the most valuable contribution to science we could think of: we donated our daughter to research! Harper is the First CDKL5 Organ Donor for scientific research.
The top 3 things YOU SHOULD DO NOW to help ensure your desire to donate your loved one’s brain to science is SUCCESSFUL!
1
Download guide
This guide walks you through what to expect and what action to take prior to and at the time of passing.
(Opens in your browser. Right click the button to save to your computer)
2
assign contact
Assigning a point of contact NOW to assist you will ensure the correct steps are taken at the time of passing.
3
PRE-REGISTER
Pre-register with your local brain bank now in order to avoid unnecessary stress at the time of passing.
Learn why Brain Tissue Donation Matters
