by thehowardhouse | Jun 27, 2013 | Harper's Updates
“Harper likes toys with lights, instrumental music, shiny beads and the wind in her hair. Harper has taught us about patience, communication and love! Patience we thought we had but realized we didn’t. Communication we thought we knew but now know...
by thehowardhouse | Jun 16, 2013 | Harper's Updates
ALL PACKED I wish it were that easy! Planning for this vacation took months, packing took 2 weeks! Paying for it….we’ll worry about that when when we get back! ;P Just Kidding Seriously, when dealing with kids, as some of you may know, it’s a chore to...
by thehowardhouse | Jun 12, 2013 | Harper's Updates
5:00 am: alarm goes off 5:27 am: I actually get out of bed Make coffee, shower, get dressed, make Lily’s breakfast, Harper’s breakfast, pull Lily’s allergy meds, pull Harper’s meds for the day…she has a shoebox full, no lie! In the midst of the...
by thehowardhouse | Jun 2, 2013 | Harper's Updates
LAST DAY HOARDING 4 HOPE GARAGE SALE IF YOU SEE IT, TAKE IT…LEAVE A DONATION OF ANY AMOUNT AT THE DOOR! This event was one of our standard three for the year to raise money for awareness of Epilepsy and CDKL5 as well as to fund CDKL5 Seizure Research. JUNE is...
by thehowardhouse | Jun 1, 2013 | Harper's Updates
Families all over Texas, the United States, and Internationally are coming together and proclaiming June as CDKL5 Awareness Month. Hope4Harper Kicks off CDKL5 Awareness Month with the Annual Hoarding 4 Hope Garage Sale Today and tomorrow the Hoarding 4 Hope sale...
by thehowardhouse | May 26, 2013 | Harper's Updates, Seizure Research Project, Upcoming Events
Harper’s 2nd Hoarding 4 Hope Fundraiser: Less Than 1 Week Away The space that has been donated by the Weitzman Group for our Hoarding 4 Hope Garage Sale Fundraiser is full of various items…the signs are up on the windows and ready to be placed all over the...
by thehowardhouse | May 10, 2013 | Harper's Updates
Harper’s BIGGEST struggle, aside from daily seizures, is Communication. Imagine with me if you will that you are unable to move unless someone moves you. Now lets combine that with an inability to speak. How would you be able to communicate your needs or...
by thehowardhouse | Mar 22, 2013 | Harper's Updates
“Stage 1: I do, you watch, Stage 2: We do together, Stage 3: You do, I applaud!” ~Wayne Cordeiro THERAPIES UPON THERAPIES…Possible with a Willing and Helpful Family These last two months have been beyond intense, not only for Harper but also for her...
by thehowardhouse | Mar 21, 2013 | Harper's Updates
What is life like without a frontal lobe? The story I shared a link to the other day on Harper’s Facebook page has left me with the need to speak to several thoughts on the connection between Epilepsy, uncontrolled seizures, and the removing the brain’s...
