by thehowardhouse | Jan 17, 2012 | Harper's Updates
It’s in God’s hands now! May we be accepting of the answer provided with feelings of gratitude toward those Doctors who provide them regardless of what the answer may be. We saw the metabolic team this afternoon. This morning I met with the...
by thehowardhouse | Jan 13, 2012 | Harper's Updates
Yesterday morning I took Harper to her therapy session even though I knew it might not be a very productive session. I mentioned we were having feeding issues and the therapist began to feel around and evaluate Harper and said I think she might have TMJ –...
by thehowardhouse | Jan 12, 2012 | Harper's Updates
It’s funny, people ask “How’s she doing?” and my response is “Oh we’re doing all right!” But in my head I’m thinking “WHAT?” We are doing our best to stay positive everyday and thus far have been...
by thehowardhouse | Dec 27, 2011 | Seizure Research Project
THANKS TO HOPE4HARPER’S PARTNERSHIP WITH FOUNDATION SELENA LUTTE CONTRE LA MALADIE-CDKL5, IN SWITZERLAND, WE HAVE EXCEEDED OUR 2011 GOAL OF $100,000 and the seizure research project with Dr Francis Jensen and her team at Children’s Hospital of Boston will...
by thehowardhouse | Dec 23, 2011 | Harper's Updates
Over time I have been gathering data on Harper and have noticed two patterns in Harper relative to her seizures: 1) has been illness hence the current attempt to fund the CDKL5 seizure research project with Dr Jensen and her team, 2) has been a relationship with diet....
by thehowardhouse | Dec 22, 2011 | Seizure Research Project
It’s not who we are but who He Is…”THE GREAT I AM,” that makes the impossible possible! This time last year Harper smiled for the first time since before Thanksgiving 2010! It was a great Christmas! This Christmas will the goal be met so that she...
by thehowardhouse | Dec 16, 2011 | Harper's Updates
So since it’s Christmas we are thinking of Jesus and presents! This cannot be escaped despite societies efforts to turn it into Happy Holiday rather than Merry Christmas. In that, I have thought about Harper and our life as such: Mind you these are my words...
by thehowardhouse | Dec 9, 2011 | Harper's Updates
Today those that stayed loyal to their school determined to obtain an education re-lived the emotions from the 2007 horrible Virginia Tech heartbreak. I am ending my day hearing of this terrible tragedy and wondering what is wrong with the children of today? Is it...
by thehowardhouse | Dec 8, 2011 | Harper's Updates
I have noticed over the last few months many articles discussing a generation of people who feel a since of entitlement. As I write this the Christmas song playing in the background is “Santa Baby” by Eartha Kitt, funny! As I read an email sent today by a friend and...
by thehowardhouse | Dec 4, 2011 | Harper's Updates
Fact, if all the people that went and watched the new Twilight movie would donate their movie ticket money, we would be well over our goal. Twilight the movie supposively is causing seizures. Our baby and many others have them without going to a movie theater. ...
