by hope4harper | Apr 12, 2016 | Harper's Updates, Seizure Research Project
In honor of Harper’s Birthday (4/12/16), we invite you to register for Hope4Harper’s memorial Run4Hope at the one-day (April 12th only) one-time price of $12! This registration special ends at midnight. No coupon code is needed. Harper’s 1st Birthday, 2011 Life...
by hope4harper | Apr 7, 2016 | Harper's Updates, Seizure Research Project
“If you lose something, it’s OK. And I get to see Harper again, but not for a long time… Just like in the book. Right?” -Lily Howard The reality of a life-threatening disorder It’s important to know the task of death requires great strength and that you...
by hope4harper | Mar 27, 2016 | Harper's Updates, Seizure Research Project
It’s a strange feeling to have relief and pain at the same time I am so happy that Harper is no longer suffering! She lived 2097 days. That is 299 weeks trapped inside a broken body that hurt. Grief is not a process it’s a new way of life Do not be fooled by our...
by hope4harper | Mar 10, 2016 | Harper's Updates
Lost and healed I woke up to find that another CDKL5 child has been lost… or another way to view it is another CDKL5 child healed. It’s a choice on which way you view it. One, while still sad, speaks words of hope and positiveness that will help you move...
by hope4harper | Jan 9, 2016 | Harper's Updates
“There is so much that I don’t understand. But I know you’re dancing with the angels.” -Monk & Neagle Harper Elle Howard April 12, 2010 – January 8, 2016 I never imagined Harper’s job on earth could be done… We got Harper...