Research
Research
Harper’s legacy carries on hope through research. Harper Elle Howard passed away in January 2016 and became the first to donate her brain to CDKL5 research, a valuable gift that along with her living tissue, will be the key to ending seizures completely. Her cell line lives at the University of California, San Diego, where it is multiplied and distributed around the world for research, while her brain tissue is at the Harvard Brain Tissue Resource Center. Together we can make a significant impact on this disease and many of the other 7,000 known rare disorders.
We are part of the CDKL5 Global Alliance and have created CDKL5 South Asia and CDKL5 Brazil in their 2019 global expansion efforts.
Harper’s Brain Research
at the University of Pennsylvania
Support Dr. Jensen’s research on CDKL5 using Harper’s brain donation.
Dr. Frances Jensen currently is a Professor of Neurology and is Chair of the Department of Neurology at the University of Pennsylvania. Her research focuses on mechanisms of injury in the developing brain, with specific emphasis on age specific therapies for clinical trials development.
She has received a multitude of awards, served on a number of leadership boards and councils, authored over 100 manuscripts, and was the 2012 President of the American Epilepsy Society. She was the diagnosing doctor for Harper’s CDKL5 Disorder and the reason Hope4Harper exists as a non-profit. Dr. Jensen saw me as more than just a mom. Read about Harper’s visit to Dr. Jensen’s lab in 2013.
Keep Up to Date on Project Publications:
Harper’s Tissue Research
at the University of California, San Diego
Support Dr. Muotri’s research on CDKL5 using Harper’s living cells.
Alysson R. Muotri, PhD is an associate professor at the University of California San Diego Salk Institute Stem Cell Research Program. He has received a multitude of awards since 2001. His research focuses on modeling neurological diseases, such as Autism Spectrum Disorders, using human induced pluripotent stem cells. His lab has developed several techniques to culture human neurons and glia for basic research and drug-screening platforms.
Harper’s living tissue is under his care for distribution around the world. His collaborative efforts with Dr. Jensen’s research using Harper’s brain is advancing science.
Keep up to date on funded project publications:
Harper’s CBD Research
We are working with research organizations to create safety and efficacy protocols necessary to produce consistent medicines using hemp based alternatives on a global scale.