by thehowardhouse | Oct 14, 2014 | Harper's Updates
How much time can we hope for Harper? With the passing of 3 CDKL5 children in the past three months, and after our own scares over the last four years wondering how long Harper would actually be with us, we decided she was deserving of a wish come true; a...
by thehowardhouse | Sep 4, 2014 | Harper's Hemp, Upcoming Events
“To wish was to hope, and to hope was to expect” -Jane Austen, Sense and Sensibility In our CDKL5 Info support group a sibling of a CDKL5-affected child has chosen to do a project on the disorder. She asked for those of us willing to expose our vulnerability...
by thehowardhouse | Aug 26, 2014 | Harper's Updates
“The life of the dead is placed in the memory of the living.” ~Marcus Tullius Cicero There are many first moments people experience at various times in their life. First birthday, first haircut, first tooth; first day of school, as many are...
by thehowardhouse | Mar 16, 2014 | Harper's Updates
IMPORTANT TRAVEL INFORMATION: You have the RIGHT to make sure you are sitting with your children prior to boarding an airplane. Once you are on board you are subject to the flight attendant’s and captain’s discretion. Should you not be seated next to...
by thehowardhouse | Feb 21, 2014 | Harper's Hemp, Harper's Updates
Harper: 1, Pseudomonas: 0 The rare germ that landed Harper in the hospital earlier this week was called pseudomonas….a mean little bug for someone like Harper. After having to research what could kill it, Harper was given clindamycin through IV and it worked to...