by thehowardhouse | Oct 14, 2014 | Harper's Updates
How much time can we hope for Harper? With the passing of 3 CDKL5 children in the past three months, and after our own scares over the last four years wondering how long Harper would actually be with us, we decided she was deserving of a wish come true; a...
by thehowardhouse | Sep 4, 2014 | Harper's Hemp, Upcoming Events
“To wish was to hope, and to hope was to expect” -Jane Austen, Sense and Sensibility In our CDKL5 Info support group a sibling of a CDKL5-affected child has chosen to do a project on the disorder. She asked for those of us willing to expose our vulnerability...
by thehowardhouse | Jun 9, 2014 | Harper's Updates
I Refused. I refused to take away (for the second time) Harper’s means of communication!!! I refused to return the eye-gaze device to Tobii. This time I drove to the congressman’s office and explained our situation in person. Please NOTE: The...
by thehowardhouse | Feb 21, 2014 | Harper's Hemp, Harper's Updates
Harper: 1, Pseudomonas: 0 The rare germ that landed Harper in the hospital earlier this week was called pseudomonas….a mean little bug for someone like Harper. After having to research what could kill it, Harper was given clindamycin through IV and it worked to...
by thehowardhouse | Jan 22, 2014 | Harper's Hemp, Harper's Hemp Timeline, Harper's Updates
As I mentioned in my last post we decided to go for the “Gold” and add the “gold” industrial hemp oil to Harper’s current supplements which include “black” industrial hemp. To recap: Week One (adding high amount of “Gold”) =...