Hope4Harper
  • Home
  • Our Story
    • Sibling Experience
    • RarelyHeard Stories
  • Harper’s Legacy
  • Living with Rare Diseases
  • Blog
  • How You Can Help
Select Page
3rd Annual CDKL5 Conference – June 2016, Chicago, IL

3rd Annual CDKL5 Conference – June 2016, Chicago, IL

by thehowardhouse | Jun 30, 2016 | Harper's Updates

We saw no better way to move CDKL5 research forward Hope4Harper spent the last two weeks openly sharing our experiences with media at the World Cannabis Conference in New York City and with families at the CDKL5 Scientific and Family Conference . My hope was that...
Hope in Our Hands: Cell Research on Harper’s Birthday (Pt. 2)

Hope in Our Hands: Cell Research on Harper’s Birthday (Pt. 2)

by hope4harper | Apr 18, 2016 | Harper's Updates, Seizure Research Project

Hope in Our Hands: Cell Research on Harper’s Birthday (Pt. 2)   “Where there is no vision, there is no hope.”-George Washington Carver Harper began life with a seizure disorder Harper Elle Howard was born April 12, 2010. It would have been her...
It’s Harper’s Birthday, This Year She Gave the Gift

It’s Harper’s Birthday, This Year She Gave the Gift

by hope4harper | Apr 12, 2016 | Harper's Updates, Hope & Healing, Seizure Research Project

In honor of Harper’s Birthday (4/12/16), we invite you to register for Hope4Harper’s memorial Run4Hope at the one-day (April 12th only) one-time price of $12! This registration special ends at midnight. No coupon code is needed. Harper’s 1st Birthday, 2011 Life...
A Missing Basket and Being Able to See: Harper’s New Beginning

A Missing Basket and Being Able to See: Harper’s New Beginning

by hope4harper | Mar 27, 2016 | Harper's Updates, Seizure Research Project

It’s a strange feeling to have relief and pain at the same time I am so happy that Harper is no longer suffering!  She lived 2097 days.  That is 299 weeks trapped inside a broken body that hurt.   Grief is not a process it’s a new way of life Do not be fooled by our...
Help is Needed in the World Harper Helped Create for Us

Help is Needed in the World Harper Helped Create for Us

by hope4harper | Mar 13, 2016 | Harper's Updates, Seizure Research Project

Your responses I asked if you thought Harper’s story should continue or end. Read the post “Continuing… or Ending… Harper’s Story here: (Part 1) and (Part 2). We will Continue! After contemplation, feedback, and family discussion which...
« Older Entries

Archives

Categories

  • CDKL5 Family
  • Grief & Loss
  • Harper's Hemp
  • Harper's Hemp Timeline
  • Harper's Hemp Travel
  • Harper's Updates
  • Hope & Healing
  • Seizure Research Project
  • Upcoming Events

Have a question?

Want to share your story? Looking for support? We’re here.

(214) 529-6952
hope@hope4harper.com

PO Box 116952
Carrollton, Texas 75011

Get in Touch

Corporate address (DO NOT MAIL)
PO Box 116952, Carrollton, TX 75011

Learn More

Press & Media
Board Members

  • Follow
  • Follow
  • Follow