Hope4Harper
  • Home
  • Our Story
    • Sibling Experience
    • RarelyHeard Stories
  • Harper’s Legacy
  • Living with Rare Diseases
  • Blog
  • How You Can Help
Select Page
Harper’s Visible Seizures Reappear

Harper’s Visible Seizures Reappear

by thehowardhouse | Nov 3, 2014 | Harper's Hemp Timeline, Harper's Updates

7 Months Seizure Free in Perspective We enjoyed 7 months of seizure freedom: Harper’s smiles, attitude, increased vocalization, improved head control, and interaction with the family.  What a blessing, a joy, a complete experience of “normal” despite...
From Wishes to Hopes to What’s Next

From Wishes to Hopes to What’s Next

by thehowardhouse | Sep 4, 2014 | Harper's Hemp, Upcoming Events

  “To wish was to hope, and to hope was to expect”  -Jane Austen, Sense and Sensibility In our CDKL5 Info support group a sibling of a CDKL5-affected child has chosen to do a project on the disorder. She asked for those of us willing to expose our vulnerability...
CBD Hemp Oil for CDKL5 Seizure Relief: An Update

CBD Hemp Oil for CDKL5 Seizure Relief: An Update

by thehowardhouse | Jul 21, 2014 | Harper's Hemp, Harper's Updates

WE CANNOT IMAGINE LIFE WITHOUT THIS CBD PRODUCT! We lived with utter torture for nearly four years prior to finding CBD! HempMedsPx RSHO High CBD Hemp Oil is NOT a Miracle CURE but rather a LIFE CHANGING product for our family!   What’s important to...
7 Months

7 Months

by thehowardhouse | Apr 25, 2014 | Harper's Hemp, Harper's Hemp Timeline, Harper's Updates

Harper, Hemp, and Seizures: Our hopes being realized? On Monday, April 14 Harper had a 24 hour Video Electroencephalography (VEEG).   EEG refers to the recording of the brain’s spontaneous electrical activity over a period of time.  VEEG can detect abnormal...
Week 6

Week 6

by thehowardhouse | Oct 27, 2013 | Harper's Hemp, Harper's Hemp Timeline, Harper's Updates

In the six weeks prior to starting hemp oil Harper had 210 visible seizures Harper has what is known as “Spasms” not “Infantile Spasms” because Harper is no longer an infant. During these, we have rapid eye movement, pupil dilation and...
« Older Entries
Next Entries »

Archives

Categories

  • CDKL5 Family
  • Grief & Loss
  • Harper's Hemp
  • Harper's Hemp Timeline
  • Harper's Hemp Travel
  • Harper's Updates
  • Hope & Healing
  • Seizure Research Project
  • Upcoming Events

Have a question?

Want to share your story? Looking for support? We’re here.

(214) 529-6952
hope@hope4harper.com

PO Box 116952
Carrollton, Texas 75011

Get in Touch

Corporate address (DO NOT MAIL)
PO Box 116952, Carrollton, TX 75011

Learn More

Press & Media
Board Members

  • Follow
  • Follow
  • Follow