by hope4harper | Mar 27, 2016 | Harper's Updates, Seizure Research Project
It’s a strange feeling to have relief and pain at the same time I am so happy that Harper is no longer suffering! She lived 2097 days. That is 299 weeks trapped inside a broken body that hurt. Grief is not a process it’s a new way of life Do not be fooled by our...
by hope4harper | Mar 13, 2016 | Harper's Updates, Seizure Research Project
Your responses I asked if you thought Harper’s story should continue or end. Read the post “Continuing… or Ending… Harper’s Story here: (Part 1) and (Part 2). We will Continue! After contemplation, feedback, and family discussion which...
by hope4harper | Mar 12, 2016 | Harper's Updates
Choices: if we had one, would we have Harper’s life be the same? There is no right or wrong answer to the question Dustin posed to me last night. “If you could go back six years and have Harper be ‘normal’ and have no clue of this special needs...
by hope4harper | Mar 10, 2016 | Harper's Updates
Lost and healed I woke up to find that another CDKL5 child has been lost… or another way to view it is another CDKL5 child healed. It’s a choice on which way you view it. One, while still sad, speaks words of hope and positiveness that will help you move...
by hope4harper | Mar 1, 2016 | Harper's Hemp, Harper's Updates, Seizure Research Project
“Hemp helped my sister be my sister” The Southwest Cannabis Conference and Expo (SWCCExpo) is a professional and educational medical cannabis and hemp conference where industry members, entrepreneurs, local leaders, companies, advocates, and curious...