OUR MISSION
Hope4Harper is a 501c3 not for profit organization created to provide hope, through research and awareness, to those living with CDKL5 disorder and other related diseases.
CDKL5 Research
Harper’s legacy carries on hope through research. Our research is symptom related and has the potential to create treatments for symptoms associated with several of the 7000 Orphan Diseases, not just CDKL5. Our specific project list can be viewed on our research page.
About CBD
The therapeutic potential of CBD is being researched by scientists around the world including Hope4Harper funded research. The addition of Hemp to Harper’s diet allowed us to stop Harper’s seizures, which changed our lives.
Organ Donation
In 2016, our youngest daughter, Harper Howard, passed away. In the midst of chaos we made the most valuable contribution to science we could think of, we donated our daughter!
Download Brain Donation Guide
This guide walks you through what to expect and what action to take prior to and at the time of passing.
Harper’s Legacy
