by thehowardhouse | Dec 6, 2018 | Harper's Updates
CDKL5 Treatment Discovery Project: A New Approach to Treating CDKL5 and Possibly More! The Jensen Lab Has Identified a New Approach for Treating CDD The Jensen Lab has identified a new approach for treating CDKL5 disorder that has crossed into the possibility...
by thehowardhouse | May 22, 2018 | Harper's Updates, Upcoming Events
“You only grow by coming to the end of something and by beginning something else.” ~John Irving 2012 2013 2014 2015 2016 Memorial Run 2018 The Final Run Run4Hope contributes to life-chasing research for children to live a better quality of life with...
by thehowardhouse | Sep 14, 2017 | CDKL5 Family
Medical Kidnapping in our CDKL5 Family It took over a year and a half to obtain the Child Protective Services full investigation report. A report that declared no findings of neglect in our home. Thank you to the CPS case manager that pulled my husband...
by thehowardhouse | Dec 30, 2016 | Harper's Updates
Hope4Harper 2016 Year in Review This year is difficult to recap because it has been difficult to live through. The only thing you sometimes have control over is perspective. You don’t have control over your situation. But you have a choice about how you...
by thehowardhouse | Sep 28, 2016 | Harper's Updates
Did Run4Hope 2016 raise enough to make an impact? Run4Hope had a 2016 goal of 300 runners and to raise $20,000 for epilepsy research and awareness. Our very optimistic plan in setting this goal is to send $10,000 to Harper’s cells at University of California...