How You Can Help
Support matters because it transforms Harper’s legacy into a lifeline for others. We don’t share her story for ourselves, we carry it in our hearts. We do it for the parents, siblings, and families navigating profound loss and medical uncertainty. Your generosity keeps our resources, community space, and stories free and available to the people who need them most.
Ways to Help
Donate
Your gift helps drive research through our collaboration with the American Epilepsy Society, advancing scientific discoveries that improve quality of life. It also keeps this website and RarelyHeard stories alive—helping families feel seen, understood, and supported—and fuels new programs waiting to launch for those living with or healing from rare disease.
Get Involved
Getting involved can mean many things: volunteering your time, helping write or find grants, sharing our resources, or spreading awareness. If you know a family navigating epilepsy or rare disease, share Lily’s book or connect them with Hope4Harper—you never know the hope your action might spark.
