Brook Hubbard – Tay-Sachs Disease

Hope4Harper followers:  Please meet Brook Hubbard Brook’s family just received the news of their daughter’s diagnosis for a disease that is incurable and untreatable, Tay-Sachs Disease. Brook will not live past age 4. Please consider giving up your morning cup of...

Weekend Entertainment

iPad Apps for Special Needs Kids Every child has a special need.  They are ALL experiencing the world for the first time!  Please click on the above iPad Apps link and give the PDF document adequate time to download as it contains 12 pages with over 60 entertaining...

Hope4Harper’s CDKL5 Friend for July

Meet JADE McKENNEY Hi there! My name is Jade and I am 7 ½ years old. I have a big sister and a big brother whom I love and who love me very very much. Just like Harper, I have CDKL5. It took almost two years to figure out my diagnosis. At that time (July 2006), I was...

CDKL5 and DADDY…

The connection of a father to their child is much different from that of the mother.  The mother has the opportunity to be with the child 24/7 for 9 months, which I understand is not always pleasant, especially for me.  However, a father sits and waits through the...