HAPPY BIRTHDAY DR SEUSS!

We care about you Harper yes we do, and here are all the ways we show you.  We share your story on a plane.  We share your story on a train.  We share you here and there and everywhere.  We share your joy and we share your pain, in the sun and in the rain.  So share...

FAT TUESDAY – MARDI GRAS FOR CDKL5

Today Harper was taken off Vapotherm and moved to 2 litters of oxygen.  We are maintaining an oxygen level of 100%!  However, Harper still remains at Medical City PICU for her Mardi Gras celebration. Mardi Gras is French for Fat Tuesday, referring to the last hurrah...

HAPPY VALENTINE’S DAY

February 14th!  Valentine’s Day and Birthdays to two friends Heather Schueler and Addison Rainy!  Happy Birthday to you both!!   On a day when you see hearts, and candies, pink and red, chocolate covered strawberries and roses running ramped  through the US...

UNEXPECTED

Well Harper had her first ambulance ride today.  As you might have already read from my previous post, yesterday Harper was diagnosed with a double ear infection and mild pneumonia.  We were sent home with breathing treatments every four hours and antibiotics. With...