Hope4Harper
  • Home
  • Our Story
    • Sibling Experience
    • RarelyHeard Stories
  • Harper’s Legacy
  • Living with Rare Diseases
  • Blog
  • How You Can Help
Select Page
From Wishes to Hopes to What’s Next

From Wishes to Hopes to What’s Next

by thehowardhouse | Sep 4, 2014 | Harper's Hemp, Upcoming Events

  “To wish was to hope, and to hope was to expect”  -Jane Austen, Sense and Sensibility In our CDKL5 Info support group a sibling of a CDKL5-affected child has chosen to do a project on the disorder. She asked for those of us willing to expose our vulnerability...
With GG: From First Memories to Last Moments

With GG: From First Memories to Last Moments

by thehowardhouse | Aug 26, 2014 | Harper's Updates

  “The life of the dead is placed in the memory of the living.” ~Marcus Tullius Cicero There are many first moments people experience at various times in their life.  First birthday, first haircut, first tooth; first day of school, as many are...
No Seizures, But a New Challenge for Harper

No Seizures, But a New Challenge for Harper

by thehowardhouse | Aug 12, 2014 | Harper's Hemp, Harper's Updates, Upcoming Events

  A complication we thought we would never have with Harper: WEIGHT GAIN! Since age three Harper had hovered between 20 to 25 pounds, even with the use of the g-tube.  We maxed out the fat calories in her diet (through healthy oils) and Harper still did not gain...
CBD Hemp Oil for CDKL5 Seizure Relief: An Update

CBD Hemp Oil for CDKL5 Seizure Relief: An Update

by thehowardhouse | Jul 21, 2014 | Harper's Hemp, Harper's Updates

WE CANNOT IMAGINE LIFE WITHOUT THIS CBD PRODUCT! We lived with utter torture for nearly four years prior to finding CBD! HempMedsPx RSHO High CBD Hemp Oil is NOT a Miracle CURE but rather a LIFE CHANGING product for our family!   What’s important to...
Communication Device for Harper: Tiring Fight, Final Battle

Communication Device for Harper: Tiring Fight, Final Battle

by thehowardhouse | Jun 9, 2014 | Harper's Updates

I Refused. I refused to take away (for the second time) Harper’s means of communication!!! I refused to  return the eye-gaze device to Tobii. This time I drove to the congressman’s office and explained our situation in person. Please NOTE: The...
« Older Entries
Next Entries »

Archives

Categories

  • CDKL5 Family
  • Harper's Hemp
  • Harper's Hemp Timeline
  • Harper's Hemp Travel
  • Harper's Updates
  • Seizure Research Project
  • Upcoming Events

Have a question?

Want to share your story? Looking for support? We’re here.

(214) 529-6952
hope@hope4harper.com

PO Box 116952
Carrollton, Texas 75011

Get in Touch

Corporate address (DO NOT MAIL)
PO Box 116952, Carrollton, TX 75011

Learn More

Press & Media
Board Members

  • Follow
  • Follow
  • Follow