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June: CDKL5 Awareness and 3 months NO Visible SEIZURES

June: CDKL5 Awareness and 3 months NO Visible SEIZURES

by thehowardhouse | Jun 1, 2014 | Harper's Updates

JUNE IS INTERNATIONAL  CDKL5 AWARENESS MONTH …and Harper starts it off with 3 MONTHS NO VISIBLE SEIZURES which is, in my opinion, thanks to the addition of Industrial Hemp Oil to her diet! Why Awareness? June 17th 2014 is CDKL5 Worldwide Awareness Day.  Creating...
Hoarding 4 Hope Sale is Over, But SEAN Needs Your Help

Hoarding 4 Hope Sale is Over, But SEAN Needs Your Help

by thehowardhouse | May 26, 2014 | Seizure Research Project

Our donated store space is FULL….STILL! So today only, any donation Harper gets goes to help Sean, who is in the hospital as we speak, fighting Leukemia, and he is tired. PLEASE help us show  our love to Sean. Every cent Harper earns today goes to him and his...
7 Months

7 Months

by thehowardhouse | Apr 25, 2014 | Harper's Hemp, Harper's Hemp Timeline, Harper's Updates

Harper, Hemp, and Seizures: Our hopes being realized? On Monday, April 14 Harper had a 24 hour Video Electroencephalography (VEEG).   EEG refers to the recording of the brain’s spontaneous electrical activity over a period of time.  VEEG can detect abnormal...
Rep’s Office Steps In, Medicaid Moves…A Little Bit

Rep’s Office Steps In, Medicaid Moves…A Little Bit

by thehowardhouse | Apr 24, 2014 | Harper's Updates

Ta-Da!! LOOK WHAT CAME TODAY!!! Thank You to a friend who reminded us our state congressman could be of great value.  With the help of Representative Ron Simmons office, Medicaid was forced to abide by their protocol.  The rule is they must request additional...
Losing Her Voice: Medicaid Denies Communication Device

Losing Her Voice: Medicaid Denies Communication Device

by thehowardhouse | Apr 7, 2014 | Harper's Updates

“Words are only painted fire; a look is the fire itself.” ~Mark Twain The frustration of Harper being denied her voice We have been trying to obtain the Tobii Digital Eye Gaze Communication device since May 6, 2013!! We were denied at the end of  2013 and...
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