Caregiver Burnout

  CDKL5 Treatment Discovery Project: A New Approach to Treating CDKL5 and Possibly More! The Jensen Lab Has Identified a...

“You only grow by coming to the end of something and by beginning something else.” ~John Irving   Run4Hope contributes...

    Medical Kidnapping in our CDKL5 Family It took over a year and a half to obtain the Child...

Register here Registration is now open! Click HERE for all Run4Hope details   We currently have 146 registered 5K participants!...

Going on NOW through April 30 Run4Hope 5K VIRTUAL Run The race has already begun but you can still start....

Hope4Harper 2016 Year in Review This year is difficult to recap because it has been difficult to live through.  ...