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June: CDKL5 Awareness and 3 months NO Visible SEIZURES

June: CDKL5 Awareness and 3 months NO Visible SEIZURES

by thehowardhouse | Jun 1, 2014 | Harper's Updates

JUNE IS INTERNATIONAL  CDKL5 AWARENESS MONTH …and Harper starts it off with 3 MONTHS NO VISIBLE SEIZURES which is, in my opinion, thanks to the addition of Industrial Hemp Oil to her diet! Why Awareness? June 17th 2014 is CDKL5 Worldwide Awareness Day.  Creating...
7 Months

7 Months

by thehowardhouse | Apr 25, 2014 | Harper's Hemp, Harper's Hemp Timeline, Harper's Updates

Harper, Hemp, and Seizures: Our hopes being realized? On Monday, April 14 Harper had a 24 hour Video Electroencephalography (VEEG).   EEG refers to the recording of the brain’s spontaneous electrical activity over a period of time.  VEEG can detect abnormal...
Rep’s Office Steps In, Medicaid Moves…A Little Bit

Rep’s Office Steps In, Medicaid Moves…A Little Bit

by thehowardhouse | Apr 24, 2014 | Harper's Updates

Ta-Da!! LOOK WHAT CAME TODAY!!! Thank You to a friend who reminded us our state congressman could be of great value.  With the help of Representative Ron Simmons office, Medicaid was forced to abide by their protocol.  The rule is they must request additional...
Losing Her Voice: Medicaid Denies Communication Device

Losing Her Voice: Medicaid Denies Communication Device

by thehowardhouse | Apr 7, 2014 | Harper's Updates

“Words are only painted fire; a look is the fire itself.” ~Mark Twain The frustration of Harper being denied her voice We have been trying to obtain the Tobii Digital Eye Gaze Communication device since May 6, 2013!! We were denied at the end of  2013 and...
NO FOOLING: April 1, 2014 Call for Donations, Sponsors, Volunteers

NO FOOLING: April 1, 2014 Call for Donations, Sponsors, Volunteers

by thehowardhouse | Mar 27, 2014 | Harper's Updates

Wrap up your spring cleaning, then bring us your stuff!! Thanks to The Weitzman Group and Trinity Management Company everything is in place for Harper’s 3rd Hoarding 4 Hope indoor garage sale.  Once again The Weitzman Group has donated 3200 square feet of sale...
The Flight After Disney I Never Shared: KNOW YOUR RIGHTS!

The Flight After Disney I Never Shared: KNOW YOUR RIGHTS!

by thehowardhouse | Mar 16, 2014 | Harper's Updates

IMPORTANT TRAVEL INFORMATION:  You have the RIGHT to make sure you are sitting with your children prior to boarding an airplane.  Once you are on board you are subject to the flight attendant’s and captain’s discretion.  Should you not be seated next to...
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