by hope4harper | Dec 12, 2015 | Harper's Updates
Speak until somebody listens. And don’t stop there! The annual meeting of the American Epilepsy Society was a success! AES 2015 was a time of reconnecting face-to-face with several individuals, organizations and doctors we now call friends. Professional and...
by hope4harper | Dec 7, 2015 | Harper's Updates
“It is always sad when someone leaves home, unless they are simply going around the corner and will return in a few minutes with ice-cream sandwiches.” ― Lemony Snicket Preparation to leave our CDKL5 family is intense! It’s off to Pennsylvania for the 69th...
by thehowardhouse | Sep 15, 2015 | Harper's Updates
Our Run Team has been tested! Run4Hope is Hope4Harper’s BIGGEST fundraising event of the year for seizure research and epilepsy awareness. It takes planning, preparation, prayer…it takes a TEAM! And Run4Hope has an amazing team of volunteers that...
by thehowardhouse | Sep 5, 2015 | Harper's Updates, Upcoming Events
As we begin our final preparations (7 days left!) for Hope4Harper’s 4th Run4Hope 5K and Family Fun Run, I look over our list of event sponsors. There are businesses and organizations that have been with Run4Hope from the beginning. And each year they...
by thehowardhouse | Sep 1, 2015 | Harper's Updates
When nothing seems to be working in your favor what do you do? Harper had a Vesicostomy surgery 18 days ago and is recovering nicely. We had a bit of a problem with yeast around the surgery site but once we determined what cream we needed to use it healed almost...
by thehowardhouse | Aug 10, 2015 | Harper's Updates
One more “normal” that is taken away from Harper My head hung, my heart sank, and I fought back the water that began to fill my eyes. It’s just one more thing Harper has to deal with; one more surgery that is risky in and of itself. Increased risk when...
