by hope4harper | Apr 7, 2016 | Harper's Updates, Seizure Research Project
“If you lose something, it’s OK. And I get to see Harper again, but not for a long time… Just like in the book. Right?” -Lily Howard The reality of a life-threatening disorder It’s important to know the task of death requires great strength and that you...
by hope4harper | Mar 31, 2016 | Harper's Updates, Seizure Research Project
In my previous post I mentioned that the parts of Harper not donated to science were cremated. Body donation is delicate but it is not a scene out of Frankenstein. Science takes the pieces they need and can appropriately preserve for valuable research. The remains...
by hope4harper | Mar 27, 2016 | Harper's Updates, Seizure Research Project
It’s a strange feeling to have relief and pain at the same time I am so happy that Harper is no longer suffering! She lived 2097 days. That is 299 weeks trapped inside a broken body that hurt. Grief is not a process it’s a new way of life Do not be fooled by our...
by hope4harper | Mar 13, 2016 | Harper's Updates, Seizure Research Project
Your responses I asked if you thought Harper’s story should continue or end. Read the post “Continuing… or Ending… Harper’s Story here: (Part 1) and (Part 2). We will Continue! After contemplation, feedback, and family discussion which...
by hope4harper | Mar 1, 2016 | Harper's Hemp, Harper's Updates, Seizure Research Project
“Hemp helped my sister be my sister” The Southwest Cannabis Conference and Expo (SWCCExpo) is a professional and educational medical cannabis and hemp conference where industry members, entrepreneurs, local leaders, companies, advocates, and curious...
by thehowardhouse | Sep 10, 2014 | Harper's Updates, Seizure Research Project
ANOTHER FANTASTIC YEAR FOR CDKL5 and EPILEPSY AWARENESS Total Registrants 190 Total Raised $14,014.04 See Run4Hope Race Results HERE: Thanks to Movin Pictures your support was captured HERE: SAVE THE DATE FOR OUR 4TH RUN4HOPE: Saturday September...
