by thehowardhouse | Sep 4, 2014 | Harper's Hemp, Upcoming Events
“To wish was to hope, and to hope was to expect” -Jane Austen, Sense and Sensibility In our CDKL5 Info support group a sibling of a CDKL5-affected child has chosen to do a project on the disorder. She asked for those of us willing to expose our vulnerability...
by thehowardhouse | Aug 12, 2014 | Harper's Hemp, Harper's Updates, Upcoming Events
A complication we thought we would never have with Harper: WEIGHT GAIN! Since age three Harper had hovered between 20 to 25 pounds, even with the use of the g-tube. We maxed out the fat calories in her diet (through healthy oils) and Harper still did not gain...
by thehowardhouse | May 26, 2013 | Harper's Updates, Seizure Research Project, Upcoming Events
Harper’s 2nd Hoarding 4 Hope Fundraiser: Less Than 1 Week Away The space that has been donated by the Weitzman Group for our Hoarding 4 Hope Garage Sale Fundraiser is full of various items…the signs are up on the windows and ready to be placed all over the...
by thehowardhouse | Oct 12, 2012 | Harper's Updates, Upcoming Events
Everything is coming together for the first Hoarding4Hope rummage sale benefitting Hope4Harper. As Lily and Harper proudly display the Certificate of Occupancy for the GIANT space that has been generously donated for the sale by Trinity Plaza, we are asking...
by thehowardhouse | Sep 7, 2012 | Harper's Updates, Upcoming Events
The RACE IS ON TOMORROW!! Sat. Sept 8, 2012 Run4Hope 5K Fun Run Fundraiser for CDKL 5 Seizure Research REGISTER ONLINE NOW Run4Hope is a 5K Fun Run/Walk/Crawl for ALL Ages! Prizes for First, Second, and Third Place MANY Door Prizes to Win! An Athletes Village will...
by thehowardhouse | Aug 28, 2012 | Harper's Updates, Upcoming Events
REGISTER ONLINE NOW Mail-In Registration VIRTUAL RUN FOR THOSE THAT WANT TO ATTEND AT HEART! (Goal: ONE RUNNER PER STATE) A Sincere THANK YOU to Many Anonymous Donors…we call them “Friends of Harper” AND Our GENEROUS Run4Hope Sponsors:...
