Meet Amber http://cdkl5amberandus.blogspot.com/! Her Birthday is April 22nd. She is one of Harper’s CDKL5 friends. Her mom Carol Anne Partridge is an amazing woman who not only has she managed to raise an wonderful family but, she is a board member of the International Foundation for CDKL5, founder of CDKL5 UK for research for a cure, as well as founder of the support group for other CDKL5 families. On top of all of this she is getting her degree to be a social worker. Her daughter Amber is one of the rare few with CDKL5 that recently learned to walk. To celebrate this monumental milestone in her life the birthday cake pictured below features her and her brothers walking together down the yellow brick road of life. HAPPY BIRTHDAY AMBER!! We Hope it’s a great one!
