Harper's Legacy
(Research, CBD, Organ Donation)
Harper’s legacy lives on—not just in science, but in people. From the moment she was born, we gave her to science through data collection, seizure tracking, and later, through her brain donation. But science moves slowly slower than families suffering can wait. So, we gave her to you too. Her story, our struggles, our moments of grace and survival—they’re here so that while you wait on science, you know you are not alone.
CBD Research
Harper was the first child to use CBD derived from industrial hemp alongside traditional anti epileptic medications, a groundbreaking combination that showed science and nature could coexist and work together. Her story helped shift global conversations around medical research, inspiring studies, policy change, and hope for families who had long been told there were no more options.
Tissue Donation
Donating Harper’s brain tissue was one of the hardest decisions we’ve ever made, but also one of the most meaningful. We wanted her life to keep making a difference, even after she was gone. Her donation became one of the first of its kind for CDKL5 research, giving scientists a rare opportunity to study the disorder at its source. Years later, her gift continues to advance discoveries that bring hope for viable treatment options for families like ours.
Organ Donation
For us, organ and tissue donation was a way for something good to grow from heartbreak. Choosing to donate isn’t easy, but it can turn loss into purpose. If you’re considering donation, take time to learn about the process and your options. It’s an intense and deeply personal decision, and it’s not right for everyone. Understanding what’s involved can help you make the choice that’s right for you and your family.
