Hope is Something Everyone Needs and Will You Help?

by | Mar 23, 2016 | Harper's Updates, Upcoming Events

How would you market HOPE?

Hope4Harper began exactly five years ago because of a specific diagnosis of Harper’s rare genetic disorder. Hope4Harper has evolved into an organization of spreading HOPE and help in funding research that is centered around providing a better quality of life to those who suffer from seizure disorders.  Hope4Harper remains to make hope real. So people can lean more towards hope while walking that fine line of hope and hopelessness.

How would you make HOPE tangible?

Harper has made the ultimate sacrifice.  When her spirit was freed her body was also freed for science.  It is currently preserved both at the University of Boston and the University of California San Diego.  Harper’s body will remain preserved until funding is available to move forward with research in epilepsy, metabolic, and mitochondrial areas.
With Harper’s passing, our 2016 5th annual Run4Hope has become a memorial.  This year her chair will be empty and we need to honor and celebrate that on her behalf and on the behalf of all who have lost their lives and all who continue to live through the horrific symptoms associated with their disorders. Hope is needed by us all.

Because HOPE IS something everyone needs!

On Sunday March 21 we held a Meet the Team event asking for help from those who loved Harper and followed her story. Thank you to those who came! We are excited about continuing the work that Harper left by making this year’s event a memorable one.
My thanks also to Elite Care in Coppell for allowing us to hold this meeting at their location.  They have been and continue to be a proud sponsor of Hope4Harper’s Run4Hope.

We are a small team with a big job and we still need help!

No meetings are required.  You can assist the team lead in the following areas and communicate with them via email, phone, text, etc.
run4hope team areas
RUN4HOPE REGISTRATION
Team Lead: Kim Glasgow
Team Duties: Swag Bag preparation and day of event registration and bag distribution
RUN4HOPE EVENT VOLUNTEERS
Team Lead: Nickie Kan Lac
Team Duties: Coordinating both individual and groups of volunteers (scouts, lions clubs, Kohl’s Cares for Kids, etc) to attend event for help in water stations, event setup and tear down, route cheer leaders, etc.
RUN4HOPE ADVERTISING/MARKETING
Team Lead: Maria Smith
Team Duties: GET PEOPLE THERE!  Help us spread the word on a larger scale!
RUN4HOPE SPONSORS
Team Lead: Maranda Brewster
Team Duties: Help collect door prizes and find appropriate points of contact for various companies for us to reach out to for sponsorship.
RUN4HOPE ACTIVITIES
Team Lead: Gloria Swanzy
Team Duties: Help organize activities to keep the kids entertained and make the event more family oriented and fun!

Join us and “Make Hope Real!”

Our mission of HOPE is both narrow and broad at the same time.  It’s not just about CDKL5, Epilepsy, Special Needs….It is about what everyone will need at some point in life: HOPE!
SO again the question is HOW would you MAKE HOPE REAL!?
If you have ideas or questions please contact hope@hope4harper.com

2016 Run4Hope Date & Location