How You Can Help
Support matters because it turns Harper’s legacy into lasting impact. When you give to Hope4Harper, you’re not funding a distant cause—you’re helping real families find hope, understanding, and connection.
Your gift allows us to keep the RarelyHeard channel alive, to edit and share stories from families still waiting to be heard, and to keep this website—a space for comfort and community— available to those searching in the dark. There are programs ready to launch, just waiting for the resources to begin.
We don’t do this to keep Harper’s story alive for us we already carry it in our hearts. We do it for you: for parents wondering if others have survived this kind of loss, for siblings trying to see if they’ll be okay, and for families learning how to make space—emotionally and physically—for life with medical equipment, uncertainty, and love that endures. Your support keeps those stories reaching the people who need them most.
Ways to Help
Donate
Your gift helps drive research through our collaboration with the American Epilepsy Society, advancing scientific discoveries that improve quality of life. It also keeps this website and RarelyHeard stories alive—helping families feel seen, understood, and supported—and fuels new programs waiting to launch for those living with or healing from rare disease.
Get Involved
Getting involved can mean many things: volunteering your time, helping write or find grants, sharing our resources, or spreading awareness. If you know a family navigating epilepsy or rare disease, share Lily’s book or connect them with Hope4Harper—you never know the hope your action might spark.
