BUTS

The word “but” is a simple sentence connector that is often times used to signify a negation. To negate is to nullify. To nullify is to make of no use or value. Do you feel the negativity? As we approach the Holiday Season we should be approaching cheerful times of...

CDKL 5 and ME…

Having A Child With Special Needs Has Made Me A Stronger And More Patient Individual Yes, I have more patience than I used to! 🙂   Circumstances have forced me to recognize my situation is bigger than I am and that I need love and support from everyone I know…...

CDKL5 CHAMPIONS

The RACE IS ON TOMORROW!! Sat. Sept 8, 2012 Run4Hope 5K Fun Run Fundraiser for CDKL 5 Seizure Research REGISTER ONLINE NOW Run4Hope is a 5K Fun Run/Walk/Crawl for ALL Ages! Prizes for First, Second, and Third Place MANY Door Prizes to Win! An Athletes Village will...

WHAT’S YOUR LANGUAGE?

Looking at Yoga as a Means to Interact with Special Needs Children Yoga, a system of exercise to promote control of the body and mind requires movement, balance, and focus.  Both Harper and Lily have been participating in Yoga for slightly more than a year.  Not long...

VITAMIX Gives Hope to Harper with CDKL 5

Vitamix changes lives…consider them when changing yours! http://www.vitamix.com/ American made and built to last this awesome machine is pureeing food into nutritious meals for our family that you’ll want to eat!   Thanks to the generosity of this family-owned...

Supporting CDKL5 with Julia

Two-year-old JULIA, Hope4Harper CDKL 5 Friend for August The following is written by Julia’s Mama: When I start talking about my Julia, I sense how my emotions are beginning to run very strong.  I just need to get up and get going and hold on to HOPE....

Brook Hubbard – Tay-Sachs Disease

Hope4Harper followers:  Please meet Brook Hubbard Brook’s family just received the news of their daughter’s diagnosis for a disease that is incurable and untreatable, Tay-Sachs Disease. Brook will not live past age 4. Please consider giving up your morning cup of...