Weekend Entertainment

iPad Apps for Special Needs Kids Every child has a special need.  They are ALL experiencing the world for the first time!  Please click on the above iPad Apps link and give the PDF document adequate time to download as it contains 12 pages with over 60 entertaining...

Hope4Harper’s CDKL5 Friend for July

Meet JADE McKENNEY Hi there! My name is Jade and I am 7 ½ years old. I have a big sister and a big brother whom I love and who love me very very much. Just like Harper, I have CDKL5. It took almost two years to figure out my diagnosis. At that time (July 2006), I was...

CDKL5 and DADDY…

The connection of a father to their child is much different from that of the mother.  The mother has the opportunity to be with the child 24/7 for 9 months, which I understand is not always pleasant, especially for me.  However, a father sits and waits through the...

BACK TO BASICS with CDKL5

PRESSURE Love’s such an old fashioned word  And love dares you to care for  The people on the edge of the night  And love dares you to change our way of  Caring about ourselves  …. This is our last dance  This is ourselves   Over the past two years we have...

GENETICALLY MODIFIED – CKDL5

\”…We all Want to CHANGE the World…\” Dustin and I have taken two very different interests but yet we have stumbled together in the process to find that it is all intermingled.  Dustin’s focus is politics and mine has been medical.  Both interests...

CELEBRATION OF FRIENDS

Meet Amber http://cdkl5amberandus.blogspot.com/!  Her Birthday is April 22nd.  She is one of Harper’s CDKL5 friends.  Her mom Carol Anne Partridge is an amazing woman who not only has she managed to raise an wonderful family but, she is a board member of the...

THIS IS IT…LAST DAYS!!

ONLINE BIRTHDAY AUCTION to benefit CDKL5 seizure research at Dolly’s Foundation facebook page ends April 15th!    SOME OF THE ITEMS UP FOR GRABS…..         For the Full view of all 50+ items visit Dolly’s Foundation Facebook...

FRIDAY THE 13th

What do ya think?  Do I look older to you?  MY birthday was a huge success!  Thank you EVERYONE, family, friends and  supporters for joining me in celebrating this very special day!  THE ONLINE BIRTHDAY AUCTION will continue until April 15th.  Visit...