Summers with CDKL5

Summers with CDKL5

Summers with CDKL5 As we dive into summer I want to share with everyone a few things we learned over the past 6 years in our world of special needs…. “Ah, summer, what power you have to make us suffer and like it.” ~Russell Baker REMEMBER SUNSCREEN! Some...
Lily’s Adjustment to CDKL5 Loss

Lily’s Adjustment to CDKL5 Loss

Lily’s Adjustment to CDKL5 Loss Lily has been adjusting to Harper’s absence surprisingly well. Lily made a video for the research Lab taking care of Harper’s living, growing cells!   Won’t you consider contributing through Memorial Run...