by thehowardhouse | Jul 25, 2016 | Harper's Updates
The Struggle With Space and the Toybox of My Dreams It’s been just over six months since our move to a new home with the space our family needed. When we expanded our square footage we thought space would no longer be an issue. Why then, is it still an issue!? Not...
by thehowardhouse | Jul 21, 2016 | Harper's Updates
“Beyond the door, there’s peace, I’m sure. And I know there’ll be no more tears in Heaven.” -Eric Clapton Broken Hearted: Our “Run Team” Volunteer Coordinator Dies in Tragic Accident It is with a very heavy heart that I...
by thehowardhouse | Jun 30, 2016 | Harper's Updates
We saw no better way to move CDKL5 research forward Hope4Harper spent the last two weeks openly sharing our experiences with media at the World Cannabis Conference in New York City and with families at the CDKL5 Scientific and Family Conference . My hope was that...
by thehowardhouse | Jun 21, 2016 | Harper's Updates
Summers with CDKL5 As we dive into summer I want to share with everyone a few things we learned over the past 6 years in our world of special needs…. “Ah, summer, what power you have to make us suffer and like it.” ~Russell Baker REMEMBER SUNSCREEN! Some...
by thehowardhouse | May 26, 2016 | Harper's Hemp, Harper's Updates
How We Stay Healthy Parents After Tragedy DISCLAIMER: I am a firm believer in medical science. I am not against the use of pharmaceuticals. doctors or medicine. Advancement in Science saves lives daily as does the addition of supplements to one’s diet....
by thehowardhouse | May 19, 2016 | Harper's Updates
Lily’s Adjustment to CDKL5 Loss Lily has been adjusting to Harper’s absence surprisingly well. Lily made a video for the research Lab taking care of Harper’s living, growing cells! Won’t you consider contributing through Memorial Run...
by hope4harper | Apr 20, 2016 | Harper's Updates, Seizure Research Project
Hope in Our Hands: Maintaining Harper’s Living Cells This is the final post in a series about our visit on Harper’s birthday to a stem cell research laboratory at the University of California at San Diego. The trip was not only to see the reality of Harper...
by hope4harper | Apr 18, 2016 | Harper's Updates, Seizure Research Project
Hope in Our Hands: Cell Research on Harper’s Birthday (Pt. 2) “Where there is no vision, there is no hope.”-George Washington Carver Harper began life with a seizure disorder Harper Elle Howard was born April 12, 2010. It would have been her...
by hope4harper | Apr 17, 2016 | Harper's Updates, Seizure Research Project
Hope in Our Hands: Cell Research on Harper’s Birthday (Pt. 1) “The emotion that can break your heart is sometimes the very one that heals it…” -Nicholas Sparks Our 3-day, 2-night visit to Harper’s new “home” at a cell...
by hope4harper | Apr 12, 2016 | Harper's Updates, Seizure Research Project
In honor of Harper’s Birthday (4/12/16), we invite you to register for Hope4Harper’s memorial Run4Hope at the one-day (April 12th only) one-time price of $12! This registration special ends at midnight. No coupon code is needed. Harper’s 1st Birthday, 2011 Life...