by hope4harper | Jan 9, 2016 | Harper's Updates
“There is so much that I don’t understand. But I know you’re dancing with the angels.” -Monk & Neagle Harper Elle Howard April 12, 2010 – January 8, 2016 I never imagined Harper’s job on earth could be done… We got Harper...
by hope4harper | Dec 29, 2015 | Harper's Updates
Hope4Harper reviews 2015 month-by-month January and February were pretty uneventful as Harper and I happily recovered out of the hospital and at home from our Christmas 2014 car wreck and flu. We were well enough by the end of the month to go ice skating and...
by hope4harper | Dec 12, 2015 | Harper's Updates
Speak until somebody listens. And don’t stop there! The annual meeting of the American Epilepsy Society was a success! AES 2015 was a time of reconnecting face-to-face with several individuals, organizations and doctors we now call friends. Professional and...
by hope4harper | Dec 7, 2015 | Harper's Updates
“It is always sad when someone leaves home, unless they are simply going around the corner and will return in a few minutes with ice-cream sandwiches.” ― Lemony Snicket Preparation to leave our CDKL5 family is intense! It’s off to Pennsylvania for the 69th...
by thehowardhouse | Sep 15, 2015 | Harper's Updates
Our Run Team has been tested! Run4Hope is Hope4Harper’s BIGGEST fundraising event of the year for seizure research and epilepsy awareness. It takes planning, preparation, prayer…it takes a TEAM! And Run4Hope has an amazing team of volunteers that...
by thehowardhouse | Sep 5, 2015 | Harper's Updates, Upcoming Events
As we begin our final preparations (7 days left!) for Hope4Harper’s 4th Run4Hope 5K and Family Fun Run, I look over our list of event sponsors. There are businesses and organizations that have been with Run4Hope from the beginning. And each year they...
by thehowardhouse | Sep 1, 2015 | Harper's Updates
When nothing seems to be working in your favor what do you do? Harper had a Vesicostomy surgery 18 days ago and is recovering nicely. We had a bit of a problem with yeast around the surgery site but once we determined what cream we needed to use it healed almost...
by thehowardhouse | Aug 10, 2015 | Harper's Updates
One more “normal” that is taken away from Harper My head hung, my heart sank, and I fought back the water that began to fill my eyes. It’s just one more thing Harper has to deal with; one more surgery that is risky in and of itself. Increased risk when...
by thehowardhouse | Aug 5, 2015 | Harper's Updates
An open call invitation A while back, a letter came in the mail from National American Miss Pageant inviting my girls to Open Call. It NEVER crossed my mind this experience would be for Lily only. Harper may be different in her physical abilities but that does not...
by thehowardhouse | Jul 25, 2015 | Harper's Updates
Harper introduces herself July 31st “My name is Harper Howard. I am 5 years old, from Carrollton Texas. I like riding horses, swimming, playing with my big sister Lily, and annoying my baby brother Seth. I let others know about living with Epilepsy with...
