by thehowardhouse | Oct 17, 2013 | Harper's Hemp, Harper's Hemp Timeline, Harper's Updates
After such a long time where our ‘normal’ was 10-15 seizures A DAY: 10/7: 1 Seizure10/8: 1 Seizure10/9: 3 Seizures10/10: 1 Seizures10/11: 2 Seizures1012: 1 Seizure10/13: 2 Seizures Total for week 4: 11 Seizures A recap of our previous weeks of...
by thehowardhouse | Oct 9, 2013 | Harper's Hemp, Harper's Hemp Timeline, Harper's Updates
It’s not about “All or Nothing”…It’s about Improvement! Harper had a low grade fever all week with some Gastro Intestinal Issues. Regardless, we stuck with our current dosing of Hemp Oil. For the first time ever Harper exhibited more seizures...
by thehowardhouse | Oct 3, 2013 | Harper's Hemp, Harper's Hemp Timeline, Harper's Updates
Zero is big During Harper’s second week using HempMedsPx high-CBD hemp oil we documented ZERO seizures! Oh what a joyous week that was!! From September 23rd through September 29th Harper enjoyed an entire week seizure-free, and we couldn’t have been...
by thehowardhouse | Oct 1, 2013 | Harper's Updates
Where the ‘Land of the Free’ was created Last week our family took a trip to Philadelphia to meet with Dr. Francis Jensen, Professor and Chair of the Department of Neurology at the University of Pennsylvania. Three years ago we first met Dr. Jensen in...
by thehowardhouse | Sep 23, 2013 | Harper's Hemp, Harper's Hemp Timeline, Harper's Updates
Is it the Medical Marijuana (MMJ)/Cannabis? or Is it the Cannabinoids (CBD)? We live in Texas where trying MMJ is not legal and we are not prepared to uproot our family and move away from our support system in order to try a supplement that may or may not work for...
by thehowardhouse | Sep 20, 2013 | Harper's Updates
Harper’s spirit is strong but her body is fragile! It amazes me how she can so quickly go from good to bad, as I am sure it is with most children battling illness. Last Tuesday, September 10, 2013 we found ourselves unexpectedly hospitalized for five Days...
by thehowardhouse | Sep 7, 2013 | Harper's Updates, Seizure Research Project
2013 Run 4 Hope Photo Gallery Participants of all ages, organizers, sponsors, relatives and friends gathered with us to raise awareness of CDKL5 Disorder and money for seizure research. One fourth of the U.S. was represented by virtual runners. Thank you to everyone...
by thehowardhouse | Aug 13, 2013 | Harper's Updates
THE PERFECT PRE RUN to the Run4HOPE….SIGN UP NOW!!!! https://psim.shutterfly.com/5k August 31, 2013Andy Brown Park-East 260 East Parkway Blvd., Coppell, TX 75019 First 500 to pick-up packets guaranteed a 5K in the Park T-Shirt! Registration Fees $30 5K August...
by thehowardhouse | Jul 20, 2013 | Harper's Updates
Harper will be having two surgeries at 9:30am on Monday July 22, 2013 Gastrostomy tube for feeding and hydration issues Nissen Fundoplication for gastroesophageal reflux difficulties. The surgeries are at Medical City Dallas and will take an hour and a half. Because...
by thehowardhouse | Jul 3, 2013 | Harper's Updates
“It does not matter how slowly you go as long as you do not stop.” ~ Confucius We learn shapes, sizes, colors, math, quantity, alphabet, reading and MORE! PLAY WISELY http://www.playwisely.com https://www.facebook.com/pages/PlayWisely/112131883048?fref=ts DVDs...
