NO CDKL5 CHILD LEFT BEHIND

Would you lie with me and just forget the world? OPPORTUNITY What initially seems, and sometimes feels, like a very depressing situation is actually an opportunity.  Each day we are all faced with choices that lead to opportunities.  What I have recently been reminded...

Groundhog Day 2012 Controversy!

I have to say Harper the Dallas, Texas CDKL5 groundhog does not agree with Phil this year!  Now, we are up against a national public figure on this one but he is only right 35%!  😉  According to Phil the Punxsutawney, PA groundhog:   for 2012 “…many shadows do I...

CDKL5 Groundhog 2012

Happy Groundhog Day 2012! Groundhogs, also known as woodchucks, are commonly found in North America and have four large, chisel-like incisor teeth.  These teeth grow about 1/16 an inch every week and because of this they must spend much of their time nibbling at wood...

Typical One Year Old!

This is kid is giving me gray hair…good thing my hair is blonde…too bad for Dustin! As you know from our last post we are having issues with feeding.  Turns out it’s from extreme muscle exhaustion and soreness.  We took her Wednesday to feeding assessment where...

TRYING TO SURVIVE

I have not forgoten about all our amazing supporters who are waiting on news regarding Harper’s progress and the outcome from our recent travels.  Unfortunately our news is not good and we are busy doing everything we can to just keep Harper going each day.  Due...